Duchenne Muscular Dystrophy (DMD)

Understanding Duchenne Muscular Dystrophy On the occasion of the World Duchenne Awareness Day on 7 September, we shed light on Duchenne Muscular Dystrophy (DMD) through…

Moving Towards Literacy

April is Cortical Visual impairment (CVI) Literacy Awareness Month.  The road to literacy is different for someone with CVI than someone with a different type…

Overview of Spinal Muscular Atrophy

What is Spinal Muscular Atrophy? Spinal Muscular Atrophy (SMA) refers to a group of rare, genetically inherited neuromuscular diseases that damage and kill specialized nerve…

Recognizing and Managing Rett Syndrome

Rett syndrome is a rare, progressive neurodevelopment condition that mostly affects females and is characterized by physical and cognitive developmental impairment (Gold et al, 2018)….