March 2023 marked three years since COVID-19 was declared as a pandemic by the World Health Organization. Life in the UAE is back to normal,…
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Duchenne Muscular Dystrophy (DMD)
Understanding Duchenne Muscular Dystrophy On the occasion of the World Duchenne Awareness Day on 7 September, we shed light on Duchenne Muscular Dystrophy (DMD) through…
Moving Towards Literacy
April is Cortical Visual impairment (CVI) Literacy Awareness Month. The road to literacy is different for someone with CVI than someone with a different type…
Overview of Spinal Muscular Atrophy
What is Spinal Muscular Atrophy? Spinal Muscular Atrophy (SMA) refers to a group of rare, genetically inherited neuromuscular diseases that damage and kill specialized nerve…
Challenging Behaviors in Children with Down syndrome: An Overview for Parents
As a parent, it can be difficult to understand and manage challenging behaviors in children with Down syndrome. As this is a common concern for…
Fragile X syndrome: What do we know about it and how do we promote a child’s participation and independence?
What is Fragile X syndrome? Fragile X syndrome (FXS) is a genetic disorder that affects a specific gene on the X-chromosome. This gene is called…
Recognizing and Managing Rett Syndrome
Rett syndrome is a rare, progressive neurodevelopment condition that mostly affects females and is characterized by physical and cognitive developmental impairment (Gold et al, 2018)….
Neuromuscular scoliosis: diagnosis and treatment options
Children with progressive and non-progressive neurological impairment like cerebral palsy, muscular dystrophy, CDKL5 deficiency disorder, and myelomeningocele present abnormal and asymmetric muscle forces, which lead…
How to support a child’s Childhood Apraxia of Speech Therapy?
The American Speech-Language-Hearing Association (ASHA) defines Childhood Apraxia of Speech (CAS) as a rare neurologic sensorimotor speech sound disorder. A child diagnosed with CAS presents…
How can we best support siblings of autistic children?
5 answers from the expert On the occasion of Autism Awareness Month, we invite Dr Georgia Pavlopoulou to share with us in this blog post…